About me

I'm Alfonso Aguarón and I welcome you to my blog. Inspired by my own diagnosis of a Hodgkin's Lymphoma in 2008 I decided to get involved in patient advocacy.
A few years later, I keep commited to my desire of help and support patients. There's still a lot to do so, do we look for change in healthcare together? Let's go!

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Friday, July 4, 2014

Our time is now

Times are changing. Long gone are the days when the patient was considered a passive subject in the healthcare system. A platform of sharing resources and information like Internet, as well as the growing number of patient organisations, have led into a more empowered, informed and active patient.

In a document titled “Stakeholder Management” published in 2011 by Capgemini, one of the largest consulting companies in the world, the main representatives from the pharmaceutical industry were asked how the importance of the key stakeholders will evolve in a 2-3 years period. As shown in the graphic below, they all agree that patients and advocacy groups will be evolving into a more active and demanding role, making the companies to redefine their role of “drug seller” to turn into an “integrated concepts developers” in which a collaborative relationship between pharma and patients is expected. To cut a long story short: it’s the time for patients.

The growing importance of patients as stakeholders also requires to be more prepared to face the challenges out there, even further in a global economical crisis environment in which payers are playing an important role, innovative treatments are becoming more expensive and patients have new needs as their diseases become chronic and they live longer.

Today it’s the day to start putting into practice concepts like collaboration, networking and preparation. We have a great opportunity and, at the same time, a great challenge. Are we ready? I hope so, because our time is now.


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